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May 24, 2024
James Deale faced a significant health scare at the age of 22 when he underwent wisdom teeth extraction and was diagnosed with Hemophilia B, a genetic disorder resulting from a deficiency of the blood clotting protein, factor IX. For years, James grappled with regular blood infusions and the constant worry about managing his condition, particularly when traveling. However, thanks to the LuskinOIC Hemophilia Treatment Center, he has become California’s pioneer recipient of a groundbreaking gene therapy drug set to manage his disorder.
“We’re all very excited,” said Doris Quon, MD, Medical Director at the Orthopaedic Hemophilia Treatment Center. “LuskinOIC has played a great role in this therapy because we were part of the phase-three clinical trials, which was the basis for the approval of this drug.”
Since the drug’s approval more than a year ago, six prior infusions have taken place, with the upcoming seventh infusion marking California’s inaugural treatment.
With this revolutionary therapy, James will produce his own factor IX protein, eliminating the need for further infusions. “I feel very positive about this treatment,” he said. “And I think it probably will change my life significantly for years to come.”
In this inspiring video, learn how James’s life has transformed thanks to the innovative treatment at LuskinOIC Hemophilia Treatment Center. Hear from medical experts and James himself about the impact of this revolutionary therapy on managing his condition. Watch now to see how cutting-edge science is changing lives.
Knowing When to Seek Care for Your Child: A Guide from LuskinOIC
As a parent, your top priority is keeping your child safe and healthy. But when your child is sick or injured, it can be hard to know what level of care they need. Should you call your pediatrician, visit urgent care, or head straight to the emergency department?
For non-emergencies, your child’s pediatrician or a pediatric urgent care center is often the best place to start. If your child’s doctor isn’t available—such as during evenings or weekends—urgent care can provide fast, effective treatment. Contact your pediatrician or visit urgent care if your child has:
You may also have access to virtual urgent care for non-emergency issues, allowing your child to be seen by a provider from home. Check if pediatric virtual urgent care services are available in your area.
If your child is seriously injured or ill—especially if the condition may be life-threatening or needs immediate attention—take them to the emergency department (ED). Seek emergency care if your child:
Your child’s health matters. When in doubt, trust your instincts—and don’t hesitate to seek care. LuskinOIC is here to support your family with trusted pediatric expertise every step of the way.