Arthrogryposis

At Luskin Orthopedic Institute for Children (LuskinOIC), we take a specialized approach to arthrogryposis. Arthrogryposis is a condition in which a baby is born with joint contractures, resulting in limited movement or a smaller range of motion. Through proper treatment, we aim to help children with arthrogryposis lead healthy and productive lives.

Signs and Symptoms

Normally, joints have stretchy tissue, but in arthrogryposis, non-stretchy tissue restricts joint movement. If extra tissue forms around the joints, the joints may even be “locked” into place.

Approximately 1 in 3,000 babies are born with arthrogryposis. Fortunately, it is not progressive and doesn’t worsen over time. 

Symptoms may vary from child to child, but some of the main signs of arthrogryposis include

• Trouble moving affected joints
• Stiff joints due to extra tissue
• Limited or no movement of the joints
• Joints that seem to be locked into place
• Thin, weak, or missing muscles
• Abnormal appearance of joints (e.g., sloped shoulders, extended knees)

Treatment and Recovery

Arthrogryposis can range from mild to severe, and treatment is different depending on the severity.

A child may be treated with:

• Physical therapy: A series of movements to exercise muscles, improve range of motion, and build strength.
• Occupational therapy: The practice of basic actions like playing with toys or getting dressed to develop fine motor skills and increase self-sufficiency.
• Casts: A shaping material is used to help a child improve movement by fixing bone alignment or keeping a certain amount of pressure on joints.

Most of the time, arthrogryposis can be treated without surgery. If your child needs surgery, the procedure is designed to release (loosen) the joints, muscles, or tendons that are restricting movement.

Our Experts in Arthrogryposis

Anthony Scaduto, MD

Richard Bowen, MD

Timothy Schaub, MD

Joan Wright, MD